Niklas is 15 months seizure free and going strong...at 18 months we will start to wean him off of medication. He's in first grade and super excited and energized. Living in today because that is all we have...he is my hero...

2010

Well here we are in 2010......so much to be grateful for. Niklas is approaching the 9 month mark without seizures. He is in Kindergarden and loving it. Everyone in the family is adapting to our new and improved lifestyle. As silly as it sounds to most we are now able to go out beyond 5pm with the family AND Brent and I are able to get out without kids. We were able to take a trip to San Diego a few months ago and stayed for a week which would of never happened before May 2009. Our vactions came to a halt about 2 years ago because we couldn't travel overnight anywhere because Niklas didn't want to be far from home at night knowing he would have seizures. we also went to Tahoe this past Christmas break and Nik had such a good time in the snow. He was in heaven. We tried to take a ton of day trips throughout the 2 years niklas was really sick to make up for the lack of nightlife! Niklas still takes medication daily two times a day and he will continue to do so until he hits a year seizure free. At a year the doctors will slowly wean him off of his medication to see if he is still able to maintain his daily routine of no seizures. He is on a lower dose of medication post surgery thank god. Still working on my book not as often as I would like but I'm able to carve out a little time! Hopefully by mid year I will complete my book and get it circulating around town! For today we are fantastic.....We say daily prayers for Niklas so he can continue to have his carefree life, freedom from seizures, fear and anxiety, and happiness. Seizures stole any sort of freedom and happiness he had during the 2 1/2 years he suffered seizures. He has been able to regain his confidence and self-esteem these past 9 months. He taught himself how to ride a two wheeler in the backyard without training wheels two months after the surgery. Nik's will and determination are unbelieveable.

June 2009

It's been to long since I have last written so here we go....we are about 6 weeks post op and Niklas is doing great. to look back at the last six weeks I gotta say Niklas is quite a miracle. When we brought him home from the hospital he was able to sit up on his own and that was about it. We had to carry him to the bathroom and basically help him eat, get dressed, and do all his basic daily necessities. Within a week he was scooting around on the floor using his right leg and right arm. He was able to travel around the house this way and on a daily basis he was getting more feeling and movement back in his extremities. The second week home he actually got off of the couch and walked across the room. I know the surgeon said within time niklas would get most of the feeling and movement back in legs and arms....but two weeks after surgery walking?? I think he surprised everyone. To date he is walking, running, playing baseball, and swimming. We are going to physical therapy two times a week to rehab his left side ( arm, hand, and leg). It's almost like someone who has had a stroke...the therapists are doing exercises to strengthen his muscles on the left side. he is a trooper and a true hero and inspiration to me. He has been seizure free since May 16th which is a miracle in itself. He is set to start kindergarden in August at John Baldwin Elementary. He clearly has the will and the way to get better. He is a survivor....