June 2009

It's been to long since I have last written so here we go....we are about 6 weeks post op and Niklas is doing great. to look back at the last six weeks I gotta say Niklas is quite a miracle. When we brought him home from the hospital he was able to sit up on his own and that was about it. We had to carry him to the bathroom and basically help him eat, get dressed, and do all his basic daily necessities. Within a week he was scooting around on the floor using his right leg and right arm. He was able to travel around the house this way and on a daily basis he was getting more feeling and movement back in his extremities. The second week home he actually got off of the couch and walked across the room. I know the surgeon said within time niklas would get most of the feeling and movement back in legs and arms....but two weeks after surgery walking?? I think he surprised everyone. To date he is walking, running, playing baseball, and swimming. We are going to physical therapy two times a week to rehab his left side ( arm, hand, and leg). It's almost like someone who has had a stroke...the therapists are doing exercises to strengthen his muscles on the left side. he is a trooper and a true hero and inspiration to me. He has been seizure free since May 16th which is a miracle in itself. He is set to start kindergarden in August at John Baldwin Elementary. He clearly has the will and the way to get better. He is a survivor....