Sunday, January 4, 2009

As many of you know Niklas has been struggling with epilepsy for the past 18 months. He has only responded a little to medication and to date we have tried 9 different kinds. His seizures are contained during the day but at night he is having seizures, every night. The seizures are disrupting his sleep, making him upset, and most of all scaring him to death. We have had so many tests over the past 18 months I can't even count on both hands, and we have come to a point that something drastic must happen to better the quality of his life. The entire process of finding the right anwser has taken a very long time and many different hospital visits ( Stanford, Children's Hospital of Oakland, and UCSF) BUT we think we have some sort of a solution. Niklas's case is being evaluated on January 15th at UCSF by a team of doctors who are going to determine the best coarse of action in treating Nik. Brent and I will have to then make a decision on the information we are given and weigh the pros/cons of the surgery. Please say a prayer for our family as we need all the help we can get. Thank you to all of the family and friends who have helped us through this very tough time.

1 comment:

  1. Hi Brent and Melissa,
    You are wonderful parents and you have a great support system. I am glad you have a blog to keep us in the loop. Niklas will be in my prayers everyday and so will you. Keep the faith and keep searching for a solution. I love you!
    Carrie

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