surgery 1 & 2.....

wow its been a long week and a half......well let's see the first surgery took place on the 6th of May. It was 6 hours and they placed a tailor made grid on his brain which consisted of 92 electrodes. These electrodes were placed in many areas on the right side to track his seizure activity and to also record the exact location of his seizure activity. Luckily within the first two days after the grid was placed he had probably 12 seizures so they got lots of valuable information. Basically the rest of the week he was able to be somewhat comfortable with Adivan which stopped his seizures for the most part for the rest of the week. Then on Wedneday May 13th Niklas went in for his second surgery and it lasted 7 1/2 hours. They removed as much of the trouble spot as they could as it was close to his motor. The surgeon seemed very happy with how the surgery went. He said that hopefully niklas will be seizure free with medication these next 9 months and then we will try to wean him from his medications slowly to see if he can get off of them. Right now where we stand ( friday) is.....he is having some pain medication throughout the day and he is also on a steroid for 5 days to help with swelling and also to help with inflammation in his right arm and hand. He is only able to move his hand and arm a little bit right now and the doctors hope that within the next three days he gets a lot more movement. If he does then he could be released on tuesday of next week. If his movement does not return by the end of the week he will have to be transported to children's in oakland for the week to have inpatient physical therapy...which he will hate so I hope that is not the case. We are basically taking it day by day for right now. The scar he has is large but luckily with time his hair will grow back and hopefully it won't be very visiable at all.......thank you everyone for your love and support. this has been such a tough and emotional week. I for certain have never done something so hard in my life. This struggle has been going on for over two years. we are tired and at the end of our rope but for sure we will never give up hope. If this surgery for some reason does not prove to be a sucess which I don't believe will be the case then we will pursue other institutions.....I think we have a winner here though.